As we said following last year’s very successful inaugural walk in Charlotte, we truly can’t begin to tell you how thankful and touched we were by your support, generosity, and response to this cause. This is close to our hearts as our oldest daughter, Shauna, has interstitial cystitis (IC), which is not a super uncommon disease, but a very impactful one, a life changing one, and one not well funded or understood in science.....and one today without a cure. IC is a disease that is not visible or typically even understood by those not afflicted, which creates significant isolation and lifestyle challenges for those affected. Also, it is autoimmune related, so for some there is an additional element of risk in today’s environment. In combination, that isolation and risk make it very, very difficult for those with IC, even more so with what has occurred due to the virus this year.
Given the additional risk, especially for those with IC or other underlying conditions, we are forced to cancel the live walk in Charlotte. HOWEVER, the good news is that we will have a week-long virtual walk commencing on Saturday, September 12, 2020, and the ICA organization will have multiple online and virtual events sponsored in that period to support, educate, and connect the IC community!
So, the walk has to wait, but the cure can’t! With that, we are forming Team Charlotte. We know it has been a challenging year for everyone, but so much good has come out of last year’s walk thanks to you. Please do whatever you can to support this cause this year. No amount is too little!
We are also excited to announce that the Toth family will match individual contributions totaling $5,000. Additionally, through a generous corporate match from SPX Corp here in Charlotte, they will match our match! In effect, a $1 contribution turns to $3 immediately!
We can’t begin to tell you the power or impact of that....for those of you in attendance at the walk last year, you heard Dr. Evans highlight that his initial $25,000 grant allowed him to do sufficient research to lead to a separate grant of nearly $600,000, and today there is encouraging new genomic research underway. In addition to raising funds to create IC awareness, education, advocate for research and support for this important work, the value of connectivity of patients afflicted with IC and the support shown for those with IC cannot even be measured.
With that, we ask you to do anything you can to support those with IC and we thank you, in advance, for your support!