Strides 4 CMV - Twin Cities

Sat August 14, 2021
Events

5k Run, Walk, Roll

9:00AM CDT - 12:00PM CDT
Description

This will be a 5k Run, Walk, or Roll to raise awareness for CMV. The event will start at 9 am. Please continue to check this website for updates.

***EARLY REGISTRATIONS AND GUARANTEED SHIRT SIZE FOR RACE DAY ENDS 7/29/21. Participants registered after 7/29 may receive their shirt after race day.***

Congenital CMV (cCMV) is the leading, non-genetic cause of childhood hearing loss, and a leading cause of childhood disabilities.  Less than 9% of women have heard of cCMV.  Proceeds from Strides 4 CMV benefit The National CMV Foundation (NCMVF), which is dedicated to promoting awareness, providing access to resources, and sharing prevention information to eliminate congenital CMV. The mission of NCMVF is to prevent pregnancy loss, childhood death, and disability due to congenital CMV. For more information, please visit www.nationalcmv.org.

Silver Sponsor
Race Day Information

Parking and Transportation

By bus: check out the various routes that make this stop Stop Eastbound (Washington Ave & Coffman Union) Stop Westbound (Washington Ave & Coffman Union) 

Metro Transit (for more information go to: https://www.metrotransit.org/university-of-minnesota)

By rail: take the Green Line to the East Bank stop; walk west two blocks towards Coffman Memorial 

Parking: Limited metered/street parking is available in the surrounding area. Additionally, paid hourly parking is available at the following parking garages on campus: East River Road Garage, Washington Ave Parking Ramp, Oak Street Ramp, or Northrup Garage. Please allow plenty of time to find parking and plan to arrive at the staging area by 8:45 am. 

Handicapped Parking: It is suggested that those needing handicapped parking utilize the Washington Avenue Parking Ramp (501 SE Washington Ave, Minneapolis)

Note from East River Road Garage: follow signs to Coffman Union. Coffman Union does not open until 9 a.m., so you will need to follow the stairs around Coffman to the front of the building. Please note, for handicap-accessible parking, use the Washington Ave ramp (501 SE Washington Ave).

The nearest restrooms are in Coffman Union; Restrooms will be available starting at 9 a.m. when Coffman Union opens.

Start and Finish Line:  We will start and end at Coffman Front Plaza (just out the front doors of Coffman, facing Northrup and the light rail)

Weather: It’s August in Minnesota, so be prepared to run in any weather.  We plan to run rain or shine; prepare for warm weather. If it is unsafe to run or if there are extreme conditions in the forecast, visit this event webpage.

Strollers and wheelchairs are welcome. Please start at the back of the pack for safety.

5k Route: (this is a 2 loop course that is accessible to strollers and wheelchair users) 

Race Contact Info
If you have any questions about this race, please contact the race director at
The Henrikson Story:

We started our journey with cCMV when our daughter Vivian was diagnosed at 2 days old.  Like many other families, we had never heard of cCMV and we were really intimidated by the unknown road ahead.  Vivian’s cCMV caused unilateral hearing loss, microcephaly, and cerebral palsy but luckily she was treated with antivirals right away to prevent further damage to her hearing.  She has had many doctor appointments, therapy, and surgeries but despite all this, Vivian’s story is one of courage, strength, and hope.  She is 5 years old and with her big beautiful smile and vivacious personality she is our daily inspiration and reminder of what hard work, determination, and a positive attitude will get you.  She loves school, singing, dancing, riding her scooter, and running with her friends and her brother.  This spirit has been contagious for our family, and one we are passionate about sharing with others.  We currently have a sponsored bill in front of the Minnesota legislature called the Vivian Act.  Once the bill is passed, it will bring much-needed CMV awareness to families and medical providers across the state.

The Stanton Story:

Hayes was born July 2019 and I had a completely healthy pregnancy with him.  While in the hospital, about a day or two after his birth, a student from the U of MN stopped in and asked us if we wanted to participate in their study.   It would be a quick swab of Hayes’ cheek and they would be on their way.  This was about the 100th person that came in our room that day and I was so tired, I just said yes and assumed my son was 100% perfect. 

About 2 weeks later, we received a call from our pediatrician.  Hayes tested positive for congenital Cytomegalovirus (cCMV).  We had no clue what it was.  We had never heard of it.  My doctor never mentioned it or tested me for it and if I hadn’t said yes out of frustration to Hayes being tested for it in the hospital, I would not have known he had it.  Immediately we began questioning what it was and what this meant and soon we were connected with Dr. Schleiss (he is so amazing!) at the U of MN and had a long talk with him on the phone.  The most common side effect of cCMV is hearing loss (but there are many, many known severe side effects).  Since Hayes had passed his newborn hearing test, Dr. Schleiss just said we would need to bring him in for hearing tests every 3 months until he is 3 years old to ensure there has been no continued loss as this can be common with cCMV.

We are so blessed so far for Hayes' health and are hopeful he continues to do well and we want to do anything we can to help educate on this topic to prevent CMV. 

The Wiorek Story:

Hudson was born with Congenital CMV but was not diagnosed until he was 8 months old.  He has an intellectual disability, cerebral palsy, seizure disorder, feeding delay, and is non-verbal.  Hudson is the smiliest kid I have ever met! He finds so much joy in the people in his life.  He LOVES music, dancing, playing with his siblings, anything Winnie-the-Pooh, and reading books. His superpower is the ability to make everyone smile!

The Devereaux Story:

Pippa was diagnosed with Congenital CMV at 20 weeks gestation. She received treatment in utero and after birth. She has an intellectual disability, developmental delay, seizure disorder, feeding delay, hearing loss, and is non-verbal. Pippa is an extremely happy, sweet girl. She enjoys her dance class, going on walks, and watching Daniel Tiger.

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