2021 NSDA Walk for Talk

Thu October 7 - Sun October 31, 2021

Here's everything you need to know about 2021 Walk for Talk. If you have any additional questions, please email Walk@dysphonia.org or call us at 800-795-6732.


What is the 2021 Walk for Talk?
The 2021 Walk for Talk is a five-day event to benefit the National Spasmodic Dysphonia Association. The goal is to bring together the NSDA community to walk, run, bike, swim, or however you would like to participate, to both increase awareness of voice conditions and raise money to help us fund vital research to defeat spasmodic dysphonia and related voice conditions. There is no cost to participate. However all donations will be matched, and 100% of the funds raised will go to making a real difference today and every day in the lives of those living with a voice disorder.

Where will the 2021 Walk for Talk take place?
You can participate no matter where you live. You pick the route – whether it is in the park, through your neighborhood or on a treadmill. You decide if you want to walk, jog or run and the event stretches over five days, so you have plenty of time to complete your goal.

Why is it called Walk for Talk if I am participating in an alternate activity?
The overall event is called Walk for Talk, but it is not limited to just walking. We are trying to make it as inclusive as possible, so you can pick whatever activity you feel most comfortable with. The real message is, just join us.

Why should I participate?
When was the last time you thought about your voice? Whether you realize or not, it is part of your identity, what makes you, you; and me, me. Many people take the ability to talk for granted, until it is taken away by a neurological condition with no cure. It has life-changing implications on relationships, career, and social interactions. The NSDA knows about the challenges those of us with voice disorders are facing. That’s why we walk, to help find answers, treatments and maybe even a cure to spasmodic dysphonia and the related voice conditions that impact so many in the NSDA community. 

The NSDA is working to change that. Since 1989, NSDA has been dedicated to improve the lives of people with spasmodic dysphonia and related voice conditions through research, education, awareness, and support. This is our biggest event fundraiser for 2021, and all donations will be doubled by a special matching grant. With our goal of $75,000 plus the matching gift, we hope to reach the $150K milestone. To help support our reserchers, we recently increased our grant opportunity to $70,000 each. By raising this amount, we could fund two seed grants to further the research toward eradicating this disorder and other voice conditions.

In addition, the annual Fall Voice Conference will be taking place on October 22-23, 2021, bringing together the leading healthcare professionals in voice. The NSDA supports Research Travel Awards to this meeting so that researchers can present their findings and collaborate with others working in the field. We are excited that these events are taking place in the same month because as we walk to raise funds for research, these experts are working to move our understanding forward on these life-challenging vocal disorders. 



How do I sign-up?
You can sign up at HERE. Registration will remain open until October 11, 2021.

Does it cost anything to sign up?
No, there is no registration fee to sign up and no minimum fundraising requirement. You can purchase an official 2021 Walk for Talk Goodie Bag that is full of swag including a t-shirt, stickers, and more for $20 each. Other items, like facemasks, hats, fleece zip-up and pet bandanas are also add-on options available for purchase both when you register and in the Walk for Talk store.

If there is no registration fee, why do I have to register? 
By registering, you are counted as part of this event. 

If I don’t buy the Goodie Bag, do I get anything? 
Yes, we will have virtual downloads including signs and graphics you can share on social media.



Is my donation tax deductible? 
Yes, 100% of your donation to the National Spasmodic Dysphonia Association is tax deductible. The National Spasmodic Dysphonia is a 501(c)3 organization and the tax ID number for the organization is 38-2918042. 

How do I make a donation?
You can make donations using a credit card online by clicking on the Donate button on the Walk for Talk event site or through an individual or team’s fundraising page. You can mail a check made payable to the National Spasmodic Dysphonia Association to 300 Park Boulevard, Suite 175, Itasca, IL 60143. You can also call 800-795-6732 to make a donation over the phone. If a donation is made online, a thank you letter/receipt will be sent to the email address that was used to make the donation. If the donation is made with a check or over the phone, a thank you letter/receipt will be mailed. 

Can I make a donation to the event without actually walking?
YES! If you would like to donate to the walk for talk event please use any of the methods mentioned above.

Why does my credit card statement say RunSignUp.com for the donation and not the NSDA?
All donations will go to the NSDA. For this event, we are utilizing the on-line platform RunSignUp.com/GiveSignUp.com which provides the online infrastructure to host this event including creating individual and team donation pages, managing groups, recording finishing times, and managing the registration. All donations are going to the NSDA but this company is processing those donations on our behalf. If you have any questions, just reach out to Walk@dysphonia.org or call 800-795-6732.


Why should I create a fundraising page?
Part of this event is to help raise funds to support the Mission of the NSDA. By creating an individual fundraising page, you are inviting your family and friends to support you in your efforts! You can even encourage people to create a team for fundraising.

How do I create an individual fundraising page during registration?
Select Sign Up to begin the registration process.
Enter in all participant information and click Continue
Select Become a Fundraiser
Enter in a name for your new Fundraiser
Enter in a goal for your new Fundraiser
Add a message to describe your Fundraiser
Create a custom URL
Click Continue
Complete your registration

How do I create a Fundraising Team during registration? 
First you will need to create an individual fundraising page (see steps above)
Now you scroll down will create the Fundraising Team
Enter in a name for your Fundraising Team.
Enter in a goal for your new Fundraising Team.
Add a message to describe your Fundraising Team
Now select any donation levels that you would like to donate towards your Fundraiser
Select who this donation will be on behalf of
Click Continue
Complete your registration

Can I create an individual donation page or join a fundraising team after I register? 
Yes, you can log in to the Walk site and go to your Profile page and click on My Registered Races. Then select Manage Registration. On the Manage Registration page, you can set up your fundraiser by going to the tab labeled Fundraiser. Then you can go to the option to Create or Join a Fundraising Team.

  • Sign In to the Walk for Talk website
  • Go to your Profile
  • Click My Registered Races
  • Click Manage next to the registration to Manage
  • Click Fundraiser in the Top Menu to begin
  • Use the process as described above

How can I get people to donate to my fundraising page?
When you create an individual fundraising page, you will create a custom URL (website address). Then it will be easy to share your fundraising page with your family and friends by sending them the link through email or social media like Facebook. People can donate by going to your fundraising page and clicking the “Donate” button on your page. People can also donate by sending a check through the mail and specifying your name and they will be added to your online total. 

Do you have any fundraising tips?
If you’re uncomfortable asking friends and family to give, you’re not alone. It can feel difficult, but every dollar you raise can make a big difference to the NSDA community. You are inviting them to support you and a cause that is important to you. Frankly, you can spend more time being nervous about asking than it takes to make your ask, so we say — go for it! Here are some tips:

  • Customize your individual fundraising page with a photo and share a little of your story. Your family and friends are more likely to engage if they see you there.

  • Send a personal message to your friends and family and include a link to your fundraising page and even encourage them to walk with you.  It doesn’t even matter where they live. An email is a low pressure invitation and can provide your story about why they should consider donating or participating in the Walk for Talk.

  • Share your page on social media and don’t be afraid to share it more than once, people read social posts inconsistently, so being persistent will likely get you more views.

  • Say thank you! After a friend or family member donates to your page, don’t forget to thank them! Send them a nice note or post your gratitude on social media. They’ll be grateful and you just might encourage others to give, too.
  • Send them some information on the research that was funded by the 2020 Walk for Talk.

Is there a fundraising minimum?
No, there is not, but we encourage each individual or team to set a goal for donations. And don’t worry if you don’t hit your goal, just do your best!



Where can I purchase promotional items for the 2021 Walk for Talk?
You can buy items either when you register or through the Store tab on the event website. 

What is in the 2021 Walk for Talk Goodie Bag? 
The official 2021 Walk for Talk Goodie Bag includes is a t-shirt (pick your size) in cardinal red, Walk for Talk stickers and temporary tattoos, and a chip clip, all packaged in a red drawstring backpack (made out of 210D polyester and measures 14 x 18). The  t-shirts are Hanes 50/50 cotton/polyester fabric blend and are available in sizes S-M-L-XL-2X-3X (please pick size when ordering and if unsure of your size, better to size up). No exchanges on t-shirts. Shipping within the United States is included, international shipping has an upcharge. Order by September 30, 2021 to guarantee delivery before the Walk. 

What other items are available? 

NEW FOR 2021! WALK FOR TALK HAT | Help rasie awareness with this hat sporting the Walk for Talk logo!  Made of 100% polyester so it’s versatile enough for casual wear or athletic events. UV protection helps prevent sunburn and makes this cap ideal for wearing outdoors. Moisture-wicking properties keep them cool, fresh and dry. Features a six-panel construction for that classic ball cap look. Matching adjustable self-fabric strap with soft Velcro® closure provides a snug fit. The color is graphite and white. One size fits most. 

NEW FOR 2021! FLEECE JACKET | Raise awareness and stay warm with a fleece jacket with the Walk for Talk logo! This fleece comes in both and mens' and womens' sizes. It is 8.3-oz, 100% polyester fleece material. Store personal items inside a pair of front zippered pockets or inside a pair of interior pockets. Jackets include an open hem and cuffs for an unrestrictive fit. The full-zip design features a reverse-coil zipper, a chin guard and twill neck taping. The color is iron gray. additional fee list below.

PET BANDANA | Your pet is your best supporter so why not get some swag for them! You can include them during your walk with this 100% cotton fabric bandana in red which has a special version of the Walk for Talk logo with paw prints. The bandana size is 22" x 22" x 30" which even works for smaller dogs.

NSDA FACEMASKS | Having a voice disorder can be challenging, but having to wear a mask can make it even harder with the additional effort to project your voice. There are three different styles and these can be viewed in the Store. The 3-ply mask is burgundy on the outside, white on the inside with black piping and ear straps. It cinches around the nose for a snugger fit. Lightweight and 100% polyester, these masks are machine-washable for extended use. Please note this is a non-medical grade mask. Each mask measures 6.75” L x 4.5” W, and the cost is $10.

If you require shipping outside of the United States, there is an additional postage fee. 

Will I get my items before the event? 
To ensure you have your items for the event, please order before September 30, 2021 (United States only). If you sign up after September 30, we will make every effort to get it to you prior to the event but cannot guarantee it. Allow for 1 to 2 weeks for shipping. Delivery by the date of the event is not guaranteed for international shipping. 

Is my race purchase of the Goodie Bag or other items considered a taxable deduction?
No, purchases of items like t-shirts, pet bandanas, and facemasks are not tax-deductible. Donations to the NSDA are 100% tax-deductible. 

Why was I charged sales tax for a charitable fundraising walk event?
Due to the recent tax changes, sales tax is charged based on the state in which the participant/buyer resides. Currently, four states charge sales taxes for race merchandise. If you reside in one of those states, you may see sales tax included in your purchase at the Walk for Talk store.

Why does my credit card statement say RunSignUp.com for my purchase and not NSDA?
For this event, we are utilizing the on-line platform RunSignUp.com/GiveSignUp.com which provides the online infrastructure to host this virtual event  All proceeds from the store are going to the NSDA but this company is processing these transactions on our behalf. If you have any questions, just reach out to NSDA@dysphonia.org or call 800-795-6732.


How long do I have to complete the Walk?
The Walk for Talk stretches out over five days – October 7-11. You get to decide how much you participate each day or just focus on one date.

What if I can't participate on those days?
No worries! Simply register and participate anytime. Be sure to send us your photos so we can share on social media. We'll be excited to hear about your walk/run experience whenever you complete it. 

How do I share on social media? Be sure to share your experience and use #WALKFORTALK to tag your photos. You can email them to Walk@dysphonia.org also.


How do I become a sponsor for the event? 

Sponsorship is great way to show your support of 2021 Walk for Talk event and the National Spasmodic Dysphonia Association. There are a number of sponsorship levels that can really showcase your business and your dedication to the community. This opportunity is open to both businesses and individuals. Ask your workplace if they would like to become a sponsor. Please contact Executive Director Kimberly Kuman at kkuman@dysphonia.org or 630-250-4504 to learn more about this opportunity. Thank you for your support!


Thank you again for your interest and support! If you have any additional questions, please email Walk@dysphonia.org or call us at 800-795-6732.

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