Hi, my name is Cole Herrick and I have CHARGE Syndrome. I like Mario, singing toys, technology, dogs, jokes and books. I love playing with my dogs, Snoopy & Peanut. They are named after Peanuts and the Gang.
When you have CHARGE Syndrome it is not easy because you have to use lots of extra stuff. Some of the things I have are a BAHA & Osia (they help me hear), a g-tube (helps me eat) and a white cane (helps me walk because I have low vision and balance challenges). I have had thousands of surgeries which I really don’t like but I love my doctors! I want to teach people about CHARGE Syndrome and raise money for the CHARGE Syndrome Foundation. Obviously, it is important to me because I have CHARGE Syndrome.
The things that I like about the foundation are going to conferences because they are fun and I meet people from all over the world who have CHARGE Syndrome. I have made friends at the conferences and we have become texting buddies. I love it!
My goal is to raise money for the CHARGE Syndrome Foundation and to teach people about CHARGE Syndrome. You can help me reach my goal by making a donation to my individual team, walking with us, or purchasing a Walk & Roll T-shirt.
I will walk with my family and friends on April 25, 2026 in the 7th Annual Walk and Roll for CHARGE. Thank you for your support!
Cole Herrick & Family
